I’ve made no secret of the fact that I developed Crohns disease identified back in 1976 when I was just 22 years of age. It has had a massive impact on my life – lots of hospital admissions, 3 bowel resections, lots of medication. It indirectly led to me developing peripheral vascualr disease so that at one time I could only walk 40 yards without pain. It also was responsible for a malignant melanoma which luckily was caught before it spread. It has also affected my liver and spleen so as you can understand it is a big part of my life. But on the positive side it was what caused my passion for breastfeeding as I was nevr fitter than when I was pregant or breastfeeding.
I have attempted to pull all the information on diagnosis, treatment, live vaccines etc into one place into this rather large factsheet (almost a book) which I hope will help professionals support mums using evidence based information.
I have already recorded a video presentation as a facebook live https://breastfeeding-and-medication.co.uk/live-video-2/inflammatory-bowel-disease-and-breastfeeding-facebook-live but am happy if you want me to present to a team – professionals, mothers with IBD. Just message me firstname.lastname@example.org
There is also a facebook page https://www.facebook.com/groups/BreastfeedingIBD with 1.4k members from all round the world.
Hope this helps everyone to use the evidence from research to support breastfeeding mums with IBD. It is a disease I wouldnt wish on my worst enemy and it is hard to deal with when you have young children. Be kind and supportive! #dontsaystoplookitup