not a comon conditioon and easy to feel you are alone . Hope this helps. It’s a chapter from my book Breastfeeding and Chronic Medical Conditions available on Amazon as Kindle and paperback https://tinyurl.com/mbbebe8x

There is an online support group run by RachelFitzD called Stretched to the Limits. Rachel was a midwife but also has lived experiencs with EHD https://www.facebook.com/groups/stretched.to.the.limits

Ehlers-Danlos Syndrome and breastfeeding factsheet